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Nikki McIntosh is the creator and founder of Rare Mamas®, an online resource and community, to help mothers of children diagnosed with rare diseases navigate the rare-disease journey. Nikki also hosts the Rare Mamas Rising podcast.
Talks About #rarediseases
Preferred Locations #NorthAmerica
Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.