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I am dedicated not only to defining and inspiring true patient-centered care but, also to ensuring that the often overlooked young adult and rare disease patients have a community to center themselves within.
Talks About #patientadvocacy #diseases
Preferred Locations #NorthAmerica
Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.
