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The RARE Health Equity Forum is an annual gathering that brings together various stakeholders within the rare disease space to address the critical issue of health equity. With a specific focus on marginalized populations within the rare disease community, the event aims to identify and implement strategies that can better serve these underserved and underrepresented individuals. Now in its third year, the forum will delve into the theme of "Equity In Action," building upon the learnings and discussions of the previous two years.The forum recognizes and acknowledges the biases, barriers, and challenges faced by marginalized communities in accessing healthcare and support within the realm of rare diseases. By fostering a collaborative environment, participants will work together to develop more effective approaches to address these challenges head-on. The primary goal of this year's event is to equip attendees with tangible tools and strategic insights that they can apply in their respective communities to support underserved and underrepresented patients.Through a series of informative sessions, participants will gain actionable knowledge and practical guidance on how to promote health equity within the rare disease landscape. These sessions will explore various topics, including identifying and dismantling systemic barriers, promoting inclusivity and diversity in research and clinical trials, developing patient-centered care models, and advocating for policy changes that address the unique needs of marginalized populations.By bringing together diverse perspectives and experiences, the RARE Health Equity Forum seeks to foster a collaborative and inclusive space where attendees can learn from one another and contribute to the collective goal of achieving equity in rare disease care. Through this shared dedication and commitment to action, the forum strives to make a meaningful difference in the lives of those who are often overlooked or underserved within the rare disease community.
Learn about the latest advancements in rare disease research, therapies, and innovations.
Acquire actionable tools and strategic insights to support underserved and/or underrepresented patients within their community.
Through interactive plenary sessions and networking, this event empowers attendees to advocate for more inclusion in the rare disease community and provides them with strategic insights and tools to support underserved and/or underrepresented patients.
Leave the forum with actionable insights, tangible strategies, and a network of connections to continue making a difference in the lives of individuals with rare diseases.
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Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners.
We're passionate about finding solutions for people facing the world's most difficult-to-treat conditions. That is why we use cutting-edge science to create and deliver innovative medicines around the globe. To us, science is personal.
At Janssen, we never stop working toward a future where disease is a thing of the past.
Merck is a leading global biopharmaceutical company that has been inventing for life for more than a century, bringing forward medicines and vaccines for many of the world’s most challenging diseases.
At Horizon Therapeutics, we believe science and compassion must work together to transform lives.
At Travere Therapeutics, our mission is to identify, develop and deliver life-changing therapies to people living with rare disease.
Pharming is a specialty pharmaceutical company developing innovative products for the safe, effective treatment of rare diseases and unmet medical needs.
At Harmony Biosciences, we specialize in developing and delivering treatments for rare neurological diseases that others often overlook.
Our vision is to profoundly improve people’s lives by revolutionizing the delivery of RNA therapeutics.
We are a global, patient-dedicated biotechnology company focused on discovering, developing, and delivering high-quality medicines for people living with rare metabolic diseases. Amicus is the Latin word for friend.
At Moderna, we believe messenger RNA, or mRNA, is the “software of life.” Every cell in the body uses mRNA to provide real-time instructions to make the proteins necessary to drive all aspects of biology, including in human health and disease.
Chiesi is an international company originated in Parma, with 85 years of experience and a strong focus on research, development, production and commercialization of innovative therapeutic solutions in the Respiratory, Neonatology, Rare Diseases and S
Chiesi is an international company originated in Parma, with 85 years of experience and a strong focus on research, development, production and commercialization of innovative therapeutic solutions in the Respiratory, Neonatology, Rare Diseases and Special Care Therapeutic Areas. We are value-orient
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