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Generate solution-focused strategies surrounding patient access, reimbursement, commercialization, launch, partnering and more. Join experts from across the rare disease community to unite in areas of unmet medical need and create life-transforming therapies and breakthroughs.
Share expertise and experiences with patient advocates, policymakers, and other industry leaders.
Connect and collaborate with peers and industry experts, and foster partnerships that can drive innovation and progress in the community.
Expand your knowledge, and contribute to advancing the rare disease field, ultimately improving the lives of patients and families affected by rare conditions.
Learn about the latest advances in rare disease diagnosis, treatment, and management, and gain practical knowledge and strategies for improving patient outcomes.
Informa is a leading international intelligence, events and scholarly research group. We're here to champion the specialist, connecting people with knowledge to help them learn more, know more and do more.
Medocity is a health technology company and the leading cloud-based enterprise platform provider combining integrated AI with multiple virtual care capabilities to transform management of chronic and complex disease – a comprehensive, patient-centere
Genomenon is a genomic health IT company that keeps pace with the constant advancements made in genomics and connects that research to patient DNA to help diagnose and treat patients with rare genetic diseases and cancer.
Dedicated to Global Product Safety, Brand Loyalty, and Patient Access Strategies that Support the Full Product Lifecycle United BioSource LLC (UBC) is a leading provider of pharmaceutical support services, partnering with life science companies to ma
PeopleMetrics helps you measure and improve the experience of your high-impact customers. We offer SaaS enterprise software, full implementation services, analysis/reporting, customer advisory boards, strategic market research and workshops.
WEP Clinical is a healthcare services provider that helps connect patients around the world with much-needed treatments.
Providing patients with comprehensive and compassionate care since 1987, Orsini is the leading, independent specialty pharmacy focused on rare diseases, gene therapies, and complex conditions.
PatientsLikeMe is the world’s largest personalized health network.
OpenApp is an innovative software development company focused on the Healthcare sector. Our specialties lie in utilising open source tools to deliver applications, systems & solutions.
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