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Join us at the 2023 RARE Advocacy Summit, hosted by Global Genes, where the rare disease community comes together for an extraordinary gathering in San Diego, California. With attendees including rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies, this summit stands as one of the world's largest events dedicated to rare diseases.Prepare to immerse yourself in a remarkable opportunity to establish meaningful connections with fellow participants, paving the way for future collaborations and partnerships. Through a series of engaging sessions, we aim to provide you with valuable insights into the latest innovations in rare disease research and treatment. Discover cutting-edge advancements that have the potential to transform lives, and gain a comprehensive understanding of the best practices for advocating on both individual and organizational levels.At the 2023 RARE Advocacy Summit, we prioritize equipping attendees with actionable strategies that can be immediately implemented to drive tangible change. Whether you are a rare disease patient seeking improved healthcare options, a caregiver dedicated to supporting your loved ones, an advocate championing the cause, a healthcare professional on the frontlines, a researcher exploring innovative solutions, or a partner or ally committed to making a difference, this summit welcomes you.In addition to the knowledge gained, this event provides a unique space for networking, fostering connections, and fostering collaboration. Engage in discussions with like-minded individuals, share experiences and expertise, and collectively explore ways to accelerate progress in the field of rare diseases. The sense of inspiration and camaraderie you'll experience is unparalleled, leaving you energized and motivated to take action upon returning home.Mark your calendars and prepare to join us at the 2023 RARE Advocacy Summit in San Diego, California. Together, we can make a profound impact on the lives of those affected by rare diseases. This is an opportunity to not only expand your understanding but also contribute to a global movement dedicated to transforming the landscape of rare disease care and support.
Forge meaningful connections in the rare disease community for future collaboration.
Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies.
Immerse yourself in an inclusive and empowering environment where rare disease advocates come together to share their stories, experiences, and insights.
Hear inspiring stories from individuals and families affected by rare diseases who have become effective advocates and made a positive impact in their communities.
Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners.
Breakthroughs That Change Patients' Lives: Pfizer is a leading research-based biopharmaceutical company. We apply science and our global resources to deliver innovative therapies that extend and significantly improve lives.
We're passionate about finding solutions for people facing the world's most difficult-to-treat conditions. That is why we use cutting-edge science to create and deliver innovative medicines around the globe. To us, science is personal.
Sanofi is a global life sciences company committed to improving access to healthcare and supporting the people we serve throughout the continuum of care.
At Janssen, we never stop working toward a future where disease is a thing of the past.
Our mission is to transform the lives of people living with rare diseases and devastating conditions through the development and delivery of innovative medicines, as well as through supportive technologies and healthcare services.
At Horizon Therapeutics, we believe science and compassion must work together to transform lives.
Catalyst Pharmaceuticals is a commercial-stage, patient-centric biopharmaceutical company focused on in-licensing, developing, and commercializing novel high-quality medicines for patients living with rare diseases.
"Jazz Pharmaceuticals plc (Nasdaq: JAZZ), is a global biopharmaceutical company whose purpose is to innovate to transform the lives of patients and their families.
Vertex is a global biotechnology company that invests in scientific innovation to create transformative medicines for people with serious and life-threatening diseases.
At Travere Therapeutics, our mission is to identify, develop and deliver life-changing therapies to people living with rare disease.
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine.
Get in the Ideas Business. At Regeneron we believe that when the right idea finds the right team, powerful change is possible.
Pharming is a specialty pharmaceutical company developing innovative products for the safe, effective treatment of rare diseases and unmet medical needs.
BridgeBio finds, develops, and delivers breakthrough medicines for genetic diseases.
BioCryst is a commercial-stage biotech company that is committed to delivering extraordinary medicines that help patients live ordinary lives. We are passionate about advancing novel therapeutics for patients with rare and serious diseases.
Our vision is to profoundly improve people’s lives by revolutionizing the delivery of RNA therapeutics.
We are a global, patient-dedicated biotechnology company focused on discovering, developing, and delivering high-quality medicines for people living with rare metabolic diseases. Amicus is the Latin word for friend.
AllianceRx Walgreens Pharmacy is a specialty and home delivery company that strives to provide exceptional care throughout a patient’s treatment journey with the medications they need every day.
BioMarin is a global pharmaceutical company focused on developing first-in-class and best-in-class therapeutics that provide meaningful advances to patients who live with serious and life-threatening rare genetic diseases.
Novartis is reimagining medicine to improve and extend people s lives As a leading global medicines company we use innovative science and digital technologies to create transformative treatments in areas of great medical need In our quest to find new
For Sangamo Therapeutics, science is a means to develop new medicines with the potential to transform the lives of patients living with serious genetic diseases.
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